SADN: Aorta Dissection Study - TRAIN Health Awareness

SADN: Aort Diseksiyonu Çalışması

Overview

SADN (Stichting Aorta Dissectie Nederland) projesi, aort diseksiyonunun altında yatan mekanizmaları, risk faktörlerini ve sonuçlarını anlamaya yönelik geniş çaplı bir araştırma girişimidir. Bu projenin amacı, kapsamlı veri toplama ve analizi yoluyla Hollanda'da aort diseksiyonu olan hastaların tanı, tedavi ve bakımını iyileştirmektir. Amaçlar SADN'ın misyonunu yansıtmaktadır ancak araştırmanın metodolojisi, ilerleyişi ve bulguları TRAIN'in sorumluluğundadır.

Objectives

Identify Risk Factors

To identify genetic, clinical, and lifestyle risk factors associated with aortic dissection.

Improve Diagnosis

To enhance diagnostic techniques and tools for early detection of aortic dissection.

Optimize Treatment

To develop and refine treatment protocols to improve patient outcomes and reduce mortality rates.

Patient Support

To provide support and resources for patients and their families affected by aortic dissection.

Methodology

Data Collection: Gathering comprehensive data on patient histories, genetic profiles, imaging studies, and clinical outcomes.

Biobank: Establishing a biobank of tissue samples and blood specimens from aortic dissection patients for molecular and genetic analyses.

Collaborative Network: Working with hospitals, research institutions, and patient organizations across the Netherlands to create a robust and collaborative research network.

Progress and Findings

Identification of Genetic Markers: Discovery of novel genetic markers associated with increased risk of aortic dissection.

Improved Diagnostic Techniques: Development of advanced imaging protocols and biomarkers for early detection.

Enhanced Treatment Protocols: Implementation of refined surgical and medical treatment strategies based on research findings.

Patient Registry: Creation of a national patient registry to track long-term outcomes and support clinical research.

Future Directions

Longitudinal Studies

Conducting long-term studies to assess the effectiveness of new diagnostic and treatment approaches.

Patient Education and Support

Developing educational resources and support programs for patients and families.

International Collaboration

Expanding research collaborations with international partners to enhance the global understanding of aortic dissection.

Train Programs

Interested in learning more?

If you’re interested in the SADN study, contact us and our research team will follow up with you.

Bize Ulaşın